Links for Patients and Caregivers

Please note that the CTBTA provides all of the following links and resources for convenience only and does not, simply by inclusion, endorse or recommend any particular facility, service, or guidance.


 

Brain Tumor Treatment Centers in Connecticut

Connecticut Children's Medical Center Neuro-Oncology Program
"The neurosurgeons at Connecticut Children's Medical Center are experienced in operating on children with both benign and malignant tumors of the brain and spinal cord.  Advances are being made in the treatment and survival of patients with these tumors thanks to the work of Connecticut Children's investigators and physicians."  Connecticut Children's Medical Center Neuro-Oncology Program.

Hartford Hospital Neuro-Oncology
"A multidisciplinary team of neuro-oncology specialists determines the best course of treatment for each patient situation: neurosurgeons, neurologists, neuro-pathologists, neuro-oncologists, neuro-radiologists and radiation oncologists. They present each case with an even broader team of specialists at the Helen & Harry Gray Cancer Center Tumor Board, ensuring that every available option is considered in creating the best treatment plan. Our neuro-oncologists also connect patients with clinical trials offering the most promising advances in tin treating tumors, and many other resources patients (and their families) need."  Hartford Healthcare Cancer Institute Neuro-Oncology

Saint Francis Hospital and Medical Center

The Brain Tumor Program

St. Vincent's Brain Tumor Center
"At St. Vincent’s Brain Tumor Center, in the Elizabeth M. Pfriem SWIM Center for Cancer Care, a multidisciplinary team of caring experts provides patients and their families with a full spectrum of treatment options. We treat you or your loved one with the personalized, compassionate care you deserve—right here, close to home."

Yale Brain Tumor Center
As part of the Yale Cancer Center, "The Brain Tumor Program is a multidisciplinary group is dedicated to the care of patients with primary brain tumors, brain metastases and neurological complications of cancer.  It is the only multidisciplinary consortium providing comprehensive brain cancer care in Southern New England and has gained regional and national recognition."
Yale Neurosurgical Oncology
Yale Brain Tumor Program Brochure

Additional Resources

St. Jude Children's Research Hospital
St. Jude Children’s Research Hospital Brain Tumor Program "specializes in treating the most challenging pediatric brain tumors."

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Patient Services

Cleaning Services
Cleaning for a Reason is a nonprofit organization partnering with maid services to offer free professional house cleanings to improve the lives of women undergoing cancer treatment.

Exercise
LIVESTRONG at the YMCA is a free 12-week program "designed to help cancer survivors overcome the effects of fatigue and deconditioning from treatment and the disease.  The program is for adult survivors from the point of diagnosis through the balance of life and includes a family membership during the 12-week program."  Offered at:  Downtown YMCA in Hartford, Farmington Valley YMCA in Granby, Glastonbury Family YMCA, Indian Valley Family YMCA in Ellington, West Hartford YMCA, and Wheeler Regional Family YMCA in Plainville.

Patients and Caregivers Blog/Websites
CarePages are "free patient blogs that connect family and friends during a health crisis."  They allow family and friends to create and follow updates on a loved one's medical care.

CaringBridge.org is a nonprofit organization that allows patients and caregivers to connect with family and friends by creating a free website "for every health journey."

Pharmacies Offering Delivery
The CTBTA makes no endorsement of the following pharmacies and simply provides this list as a matter of convenience.

Beacon Prescriptions is a "locally owned pharmacy" serving the areas around Bristol, East Haven, New Britain, Southington, Terryville, and Winsted.  Services include "fill/refill prescriptions in 10 minutes or less, a 24/7 emergency service, a guaranteed check for drug interactions, refills online or by telephone, and guidance on nutritional supplements."

Connecticut Pharmacy "offers patient-centered care" and "has been serving Fairfield County for more than 40 years providing pharmaceutical care 365 days a year with an on-call pharmacist available 24 hours a day."

Finch Pharmacy is a "privately owned and operated pharmacy conveniently located in Greenwich, Connecticut."  Services include "free delivery, refill prescriptions, transfer prescriptions, and special orders."

Hancock's Pharmacy is a "full service pharmacy...Located at 840 East Main Street in Meriden, Connecticut, the facility has been serving the area since 1959."  Hancock's offers "more than customary pharmaceutical services."  Its "home care department includes "durable medical equipment...and statewide delivery...from 7 AM to 1 AM." 

Suburban Pharmacy is "family owned and operated, located at Bishop's Corner in West Hartford, CT" and "has serviced the community for over 50 years."  Services include "automatic refill system and delivery services" from Monday through Saturday. 

Westown Pharmacy is a Health Mart pharmacy offering "broad availability of brand and generic prescription, private-label, over-the-counter medications, and pharmacist counseling."  Free delivery in Manchester and parts of neighboring towns.

Salon Services
At the "Cut Out Cancer" salon, their mission is to "help you get through your cancer treatments, providing special care and healing through salon & spa services that target specific symptoms or just make you feel pampered.  On the second Monday of every month when Milano [salon] is normally closed, the salon will be open exclusively for you, to enjoy the salon services free of charge."

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Publications

Compassionate Use
FDA News Bulletin on Compassionate Use When patient enrollment in a clinical trial is not possible (i.e., a patient is not eligible for any ongoing clinical trials, or there are no ongoing clinical trials), patients may be able to receive an investigational medical product, when appropriate, through expanded access of that product.  Expanded access allows the use of an investigational medical product that has not yet received FDA approval, outside of the clinical trial setting.

Frankly Speaking About Cancer:  Brain Tumors
The National Brain Tumor Society provides this free download, "Frankly Speaking About Cancer: Brain Tumors," as a source of information about brain tumors.

Grief and Emotional Wellness
"Grief Intelligence:  A Primer."  Ashley Davis Bush, LCSW, licensed psychotherapist and grief support counselor, wrote this blog to help those experiencing grief and others understand the ongoing nature of grief, the continued relationship with their loved one, and the ability to transcend grief.

TBI/ABI
Healthy Living:  Coping with a Traumatic Brain Injury.  Heather Turner, a speech-language pathologist and ABI support group facilitator at Lawrence & Memorial Hospital, offers guidance on how to help those with a traumatic or acquired brain injury in social situations.

Telling Your Children You Have Cancer
"How Do I Tell My Children I Have Cancer?"  The Cleveland Clinic offers advice on how to tell your kids that you have cancer.

Things I Wish I'd Known: Cancer Caregivers Speak Out
Family caregivers are the unsung heroes of the life-saving drama that's triggered by a cancer diagnosis.  Nearly three quarters of American households will find themselves caring for a cancer patient at one point in their lives.  This book is the first to capture their thoughts, feelings, and insights on a large scale.  Features interviews with 86 cancer-patient caregivers, including current and former CTBTA Board Members, Stacey Mairano, Kimberly Hodnett, and Ron Mairano.

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Other Nonprofit Assistance & Information

The American Brain Tumor Association is a nonprofit organization "founded to advance the understanding and treatment of brain tumors with the goals of improving, extending, and ultimately saving the lives of those impacted by a brain tumor diagnosis."

Children's Brain Tumor Foundation is a nonprofit organization with a mission "to improve the treatment, quality of life, and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy of families and survivors."

The Corporation for Independent Living is a nonprofit organization with an "AccesSolutions" program that provides a variety of home modifications and specialized equipment to people with disabilities who cannot afford modifications.

Make-A-Wish CT "grants the wishes of children with life-threatening medical conditions to enrich the human experience with hope, strength and joy."  Not limited to "end-of-life" wishes, Make-A-Wish grants wishes to children that meet the medical criteria during any stage of their illness.

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Patients & Caregiver Recommended Services

Although the CTBTA makes no official endorsement of the following services, these products and services have been recommended by other brain tumor patients and caregivers in our community.

Car Service
AmRide is a company that "offers you some independence by driving you in your own car to social events, family visits, doctor appointments, etc." for a fee.

Insurance Agent for Medicare
Healthcare Associates of Connecticut is a "family owned and oriented business...founded in Marlborough[,] Connecticut in 1991 to provide Medicare Supplement and Medicare Advantage insurance plans to Connecticut residents."

Medication Reminder
MediSafe Medication Reminder is a free app for your mobile phone to track medications or daily pills.
MediSafe Link for iOS devices
MediSafe Link for Android Devices

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