Links for Patients and Caregivers


Hospitals and Cancer Treatment Centers

Connecticut Children's Medical Center
Connecticut Children's Medical Center is a nationally recognized, 187-bed not-for-profit children's hospital serving as the primary teaching hospital for the University of Connecticut School of Medicine department of pediatrics.

Hartford Hospital
The Helen & Harry Gray Cancer Center is a nationally-recognized center for the treatment of patients with cancer, and one of the largest of its kind in the Northeastern U.S. It houses many talented and experienced medical specialists and support personnel, as well as the latest in technological equipment to provide cutting edge, state-of-the-art care. More than 50,000 patient visits are made annually to the Center.

Saint Francis Medical Center
One of the most progressive outpatient cancer treatment facilities in New England. They provide the latest technology and most comprehensive range of treatment alternatives in the region. More than 1,500 patients and their family members depend on the Center every year.

Yale Brain Tumor Center
As part of the Yale Cancer Center, this multidisciplinary group is dedicated to the care of patients with primary brain tumors, brain metastases and neurological complications of cancer. It is the only multidisciplinary consortium providing comprehensive brain cancer care in Southern New England and has gained regional and national recognition.

Yale Brain Tumor Program Brochure

St. Jude Children's Research Hospital
St. Jude is unlike any other pediatric treatment and research facility in the world. Discoveries made here have completely changed how the medical community treats children with cancer and other catastrophic diseases. With research and patient care under one roof, St. Jude is where some of today's most gifted researchers are able to find scientific answers more quickly.

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Patient Services

AmRide offers you some independence by driving you in your car to social events, family visits, doctor appointments, etc.

Cleaning for A Reason
Cleaning for a Reason is a nonprofit organization partnering with maid services to offer free professional house cleanings to improve the lives of women undergoing cancer treatment.

Cut Out Cancer Connecticut
At the "Cut Out Cancer" salon, they help you get through your cancer treatments with special care and healing through salon services that target those specific symptoms or just pamper you during this time.

Healthcare Associates - Medicare Made Clear
Licensed and certified with the majority of the leading providers in Connecticut for supplemental and Medicare Advantage insurance plans. If you are comfortable with our guidance, we welcome the opportunity to work with you.

LIVESTRONG at the YMCA is a 12-week program helps designed to help cancer survivors overcome the effects of fatigue and deconditioning from treatment and the disease.  The program is for adult survivors from the point of diagnosis through the balance of life and includes a family membership during the 12-week program.  Offered at:  Downtown YMCA in Hartford, Farmington Valley YMCA in Granby, Glastonbury Family YMCA, Indian Valley Family YMCA in Ellington, West Hartford YMCA, and Wheeler Regional Family YMCA in Plainville.

Suburban Pharmacy 
Suburban Pharmacy is family owned/operated, located at Bishop's Corner in West Hartford, CT and has serviced the community for over 50 years.


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Brain Tumor Hospice Care
A website for caregivers approaching this challenging juncture to help them recognize and understand the end-stage events that are likely to happen.  This resource also helps visitors find support in providing the best of loving care during this critical time.

CarePages allows family and friends to create and follow updates on a loved one's medical care.

Children's Brain Tumor Foundation
An organization with a mission to improve the treatment, quality of life, and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy of families and survivors.

A registry of federally and privately supported clinical trials conducted in the United States and around the world. gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details.

Compassionate Use
When patient enrollment in a clinical trial is not possible (i.e., a patient is not eligible for any ongoing clinical trials, or there are no ongoing clinical trials), patients may be able to receive an investigational medical product, when appropriate, through expanded access of that product.  Expanded access allows the use of an investigational medical product that has not yet received FDA approval, outside of the clinical trial setting.
FDA News Bulletin on Compassionate Use

The Corporation for Independent Living
The Corporation for Independent Living is a nonprofit organization with an "AccesSolutions" program that provides a variety of home modifications and specialized equipment to people with disabilities who cannot afford modifications.

Connecticut's Pre-Existing Condition Insurance Program (PCIP)
Connecticut's PCIP, which was created under national health care reform, offers comprehensive health care coverage to Connecticut residents, regardless of age or income.  It is open to Connecticut residents who have qualified, diagnosed medical conditions and have been uninsured for at least six months.

Frankly Speaking About Cancer:  Brain Tumors
The National Brain Tumor Society provides this free download, "Frankly Speaking About Cancer: Brain Tumors," as a good source of information about brain tumors.

Grief and Emotional Wellness
An article from Ashley Davis Bush, LCSW, licensed psychotherapist and grief support counselor, to help those experiencing grief and others understand the ongoing nature of grief, the continued relationship with their loved one, and the ability to transcend grief.

Have A Chance
A not-for-profit organization dedicated to helping individuals and families impacted by a brain tumor find the most appropriate and innovative therapies. Have a Chance is committed to researching treatments that touch on four elements of healing:  conventional, alternative, spiritual and psychological.

How Do I Tell My Children I Have Cancer?
The Cleveland Clinic offers advice on how to tell your kids that you have cancer.

Make-A-Wish "grants the wishes of children with life-threatening medical conditions to enrich the human experience with hope, strength and joy."  Not limited to "end-of-life" wishes, Make-A-Wish grants wishes to children that meet the medical criteria during any stage of their illness.

MediSafe Medication Reminder
An app to track medications or daily pills.
MediSafe Link for iOS devices
MediSafe Link for Android Devices

National Brain Tumor Society
National Brain Tumor Society is a leader in the brain tumor community.  By bringing together the best of research and patient services, NBTS serves as a comprehensive resource for patients, families, caregivers, researchers, and medical professionals.  They have a national presence, with offices on both coasts and activities and influence throughout the U.S.

American Brain Tumor Association
Founded to advance the understanding and treatment of brain tumors with the goals of improving, extending, and ultimately saving the lives of those impacted by a brain tumor diagnosis. 

Things I Wish I'd Known: Cancer Caregivers Speak Out
Family caregivers are the unsung heroes of the life-saving drama that's triggered by a cancer diagnosis.  Nearly three quarters of American households will find themselves caring for a cancer patient at one point in their lives.  This book is the first to capture their thoughts, feelings, and insights on a large scale.  Features interviews with 86 cancer-patient caregivers, including CTBTA Board Members, Stacey and Ron Mairano, and Kimberly Hodnett.

Voices Against Brain Cancer
An organization whose mission is to find a cure for brain cancer by advancing scientific research, increasing awareness within the medical community, and supporting patients and families afflicted with this devastating disease.


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